Disturbed about Vagus Nerve Stimulator

11/15/08 - As I put Chase to tonight, I realized after the night was through, he'll have made it through week one of the wean off clonopin. He's had 3 big seizures, but it hasn't been as bad as I thought it would be.


On the other hand, I've discovered that his Vagus Nerve Stimulator can have an adverse side effect of stopping his heart from beating. It can also apparently make his seizures worse. I'm now wondering if the worsened seizures episodes are from the VNS, and if we made a right decision implanting him with it. Will I wake up one day to a dead child? Could his heart stop beating at school and they won't be prepared to deal with it. This all started by searching for a doctor who supports the device. I can't find the company's website any longer.



11/16/08 - As I was typing this blog entry - my husband came in and told me he could find the company's website just fine, and that I was overreacting. All the bad blogs on the VNS were coming from one person. I stopped working on my blog.



11/21/08 - I called and talked to the pediatrician's nurse asking what I should do about not being able to make an appointment with the neurologist. Hopefully the good doctor will be able to help me pull through this. I have no idea if he will be able to help or not, but I would like his opinion about the potential death side effect on the VNS.



The next drop for the wean is Monday night - 11/24/08.